Cystic Fibrosis Facts
Cystic fibrosis is a genetic condition that leads to recurrent sinus and pulmonary infections, as well as gastrointestinal problems. There are about 30,000 people with cystic fibrosis in the United States and approximately 70,000 people worldwide. Sixty years ago, children diagnosed with CF usually did not survive childhood. However, due to improved therapies, medications and technological advancements, the average life expectancy of a CF patient has been steadily increasing since the 1950s and is currently close to 40 years.
After several decades of research into cystic fibrosis, there is a wealth of information about the disease, its common bacteria, and treatment options. How many of these facts did you know already?
1. Cystic fibrosis (CF) is the most common terminal genetic disease in North America.
2. Although it is seen in all racial groups, it is most common in Caucasians, and rare in individuals from the Far East and Native Americans.
3.Older children and adults are usually diagnosed based on symptoms, such as frequent respiratory infections, malnutrition, and/or male infertility.
4. The number of patients living into late adulthood is expected to increase approximately 75 percent by 2025 due to advancements in treatment options and airway clearance therapies such as mobile HFCWO vest therapy.
5. It’s common for people to not be diagnosed with CF until adulthood. But some have even lived into their 60s before being diagnosed.
6. In the 1960s, it was popular to have patients with CF sleep in “mist tents,” with the belief that a fine mist would thin mucus in the lungs and facilitate airway clearance.
7. Cystic fibrosis is an autosomal recessive genetic disorder that is passed down through families.
8. Scientists have been researching gene therapy, in an attempt to find a cure for cystic fibrosis.
9. Individuals with cystic fibrosis require a diet that is high in calories and protein and approximately 3,000 calories a day.
10. Cystic Fibrosis is also referred to as “65 roses.” The “65 Roses” story dates back to 1965 when an 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, “65 Roses” is a term often used by young children with cystic fibrosis to pronounce the name of their disease and is widely used in campigning for the CF community.